Praxis Malawi – Appeal

praxis malawi


Dear Colleague,

You know me from my work in ACENDIO, where I have served on the board for many years, as board member, Secretary and Vice-President. I have also run the Secretariat for some years. I am writing to you in a personal capacity now, with the permission of the ACENDIO President

In June of this year, I will be travelling to Malawi for 4 weeks as part of a Canadian-led participatory action project entitled Praxis Malawi ( The work is underpinned by the critical pedagogical approach described in Paolo Freire’s work. I am project coordinator for developing a ‘community health clinic’ action from concept to reality and will be working closely with locals in the Kasungu area of Malawi and international colleagues. Two intellectual disability nursing students are travelling with me in a volunteer capacity and we will be joined by a Canadian wound care nurse specialist and a biochemistry and international relations student from Mount Allison University in Canada.

Our first piece of work with the communities will focus on family health and child-health education and promotion as well as starting some initial work around disability. We aim to supply each family with a basic family health kit which will be easy and cheap to replenish from locally available resources. We are currently identifying these sources with local health personnel and we plan to purchase these requisites when we arrive in early June. Whilst my costs are being met in their entirety from a number of sources, I am currently trying to raise funds to bring over to meet the health requisite costs. We estimate that we currently have about €1000 between what has been raised in Canada and here but this and any extra money will be used to sustain our health actions and to expand the focus from family to village health. It will go directly to the people themselves and none will be used for administrative costs.

If you are in a position to help in any way, please consider donating something to my gofundme account: (

Many thanks for reading this email. I hope you do not mind me sending it to you on this one occasion.

Dr. Fintan Sheerin


ENS4Care Survey Is Live

Dear EFN members,

We are very pleased to announce that the ENS4Care questionnaire to collect the practices has been launched today!

Please find below the link to Survey Monkey, here below, for you to complete and/or disseminate it to your network. Please, bear in mind that the link will be also published at the ENS4Care website, Twitter and LinkedIn.

The deadline to submit the practices has been extended until 14 March 2014.

If you have any questions, please do not hesitate to contact the EFN office (0032 2 512 74 19).

Best regards,

ACENDIO Publications

All Newsletters are now available on open access along with the proceedings of the most recent ACENDIO conferences. The latest Newsletter can be accessed now.

Derek Hoy

Derek Hoy

Derek Hoy

We are really very sad to learn that Derek Hoy died in the early hours of Saturday morning, at home and surrounded by his family (his wife Christine and their daughters Jenny and Sarah) after an illness. Derek was an immense influence on nursing informatics across Europe and beyond. A true Scotsman, his passing is an immense loss to us all. Bearing in mind his heritage, it seems fitting to remember him with the Gaelic : Ní bheidh a leithéid ann arís (His like will never be seen again).

Fintan Sheerin

ACENDIO 2013 Registration Open

Registration for the 9th Biennial Conference of ACENDIO is now open.

The Conference of will take place in the Radisson Blu Hotel, Golden Lane, Dublin, Ireland, on 22nd and 23rd March 2013. This is the first time that the conference will have been held in Ireland and we are looking forward to welcoming many ACENDIO members and other colleagues from across Europe and beyond. This conference has all the signs of being a very exciting one and will continue the eHealth focus of the previous conference. This time, though, we are examining the implications for nursing as we innovate for a rapidly changing health care environment.

We are most fortunate to be welcoming four distinguished guests who will provide exciting keynotes (please see next page). These will be complemented by a series of invited workshops on topics of particular interest to ACENDIO’s work.

There has been great interest in the conference with abstracts having been submitted from 20 countries spanning five continents! Indeed, the interest was such that we extended the abstract submission date twice to accommodate those who wanted to send an abstract. The ACENDIO Scientific Committee is currently reviewing all abstracts and notification will be emailed in due course.

Conference registration opened on 19th October 2012 and Early-Bird Fees will apply until 15th January 2013. These fees, which are the same as for the last conference, are as follows:

ACENDIO Members: €275.00

Non-Members: €325.00

Students: €275.00

Remember, payment of the conference fee includes free membership of ACENDIO for the biennium 2013-2015. Registration is via the ACENDIO website (ACENDIO REGISTRATION). Follow the link to the registration page where varying options on accommodation are also available. The low conference fee and the availability of low-fare air travel options from many locations across Europe make this an ideally accessible conference for all.

Finally, if you want to enjoy the Dublin atmosphere, what better time to come than in mid March, when the St. Patrick’s Day Festival will be in full swing ( and what a better year than 2013 as Ireland prepares to welcome back its global family and friends in the wonderful Gathering (

Join our ACENDIO Gathering in 2013!


Professor Anne-Marie Rafferty DPhil CBE FRCN

Dean and Chair of Nursing Policy

School of Nursing and Midwifery

King’s College London


Prof. Rafferty’s interests include workforce research and policy; quality of work environment; nurse and patient outcomes; nursing history, international and colonial nursing; research and health policy.

Professor Jane Grimson PhD FRAC FIAE FICS FRAMI

Director of Health Information

Health Information and Quality Authority


Prof. Grimson’s research interests include knowledge and data engineering, information systems, health informatics, system integration, EHR.

Professor Bonnie Westra PhD, RN, FAAN, FACMI

Associate Professor

School of Nursing

University of Minnesota


Prof. Westra’s research focuses on developing and using knowledge to improve the exchange and use of electronic health data to support older adults to remain safely with optimal health in the community. This focus includes efficient capturing, storing, and secondary analysis of electronic health data; development, standardization, and harmonization of nursing and health data; informatics competencies for effective use of health information technology; and secondary analysis of EHR data, including data mining techniques.

Dr. Cornelia Ruland RN PhD FACMI


Center for Shared Decision Making and Nursing Research
Rikshospitalet National Hospital Oslo,


Dr. Ruland’s interests include: patient preferences and shared decision making; decision support systems (DSS) to support preference-and evidence-based patient care; consumer Health Informatics; evidence-based practice; quality Improvement; DSS for nursing resource management; Web-based education; Issues in knowledge representation.


1. Competent information management – a call for value added to nursing documentation in the HER.

Prof. Anne Moen PhD, Department of Nursing Science, University of Oslo, Norway.

2. Standardised nursing documentation and its effect on patient outcomes

Prof. Anna Ehrenberg PhD, Head of Research, School of Health and Social Studies Dalarna University, Sweden.

Ulla-Mari Kinnunen, Project Researcher (Patient Health Research), University of Eastern Finland, Finland

3. European Observatory on Nursing Standards


4. eHealth workshop (focusing on hardware and applicability for nursing)

Martin Lysser, Nursing and Medical Informatician, INSELSPITAL, Universitätsspital Bern, Switzerland.

5. To be or not to be represented? The use of nursing standardized language in a multi-professional health record.

Dr. Jan Florin, Head of Department, School of Health and Social Studies Dalarna University, Sweden.

Tutorial: How nurses can use HL7? What can Nurses do for HL7?


This tutorial “How nurses can use HL7”, provides an overview of Health Level Seven standards from a professional perspective. It explains what HL7 standards exist and how these assist nursing in EHR development and use, and in data communication efforts for several purposes. Standards are a prerequisite to functionality of healthcare information systems and the support of various care processes. In particular, where continuity of care and reporting of care quality are involved, nurses have a pivotal role. Such efforts usually involve more than one system, and more than one organization, hence, these require data communication. It is HL7’s mission to create the best and most widely used information standards in healthcare. Nurses have been increasingly involved in the Health Level Seven (HL7) Work Groups and the standards development processes over the past ten years. It makes sense addressing specifically the HL7 use by nurses, since they are the largest group of healthcare providers in the world. The ultimate goal of this tutorial is that the more engaged nurses are in the standards specifications and development process, the more functional their information systems and data exchanges will be.

This tutorial will cover:

  • Relevant types of standards for nursing and the position of HL7 in this
  • The HL7 standards development organization,
  • An understanding of HL7 version 3 standards, in particular Care Record and Clinical Document Architecture
  • The Electronic Health Record / Personal Health Record standards
  • How to handle nursing knowledge and vocabulary in the suite of HL7 standards
  • How these standards are and may be used in nursing care
  • How nurses can participate in the standards development process.

1 Co-chair Health Level Seven Work Group Patient Care.

2. Member HL7 Structured Documents Working Group.

Date: September 10, 2012

Location: Hyatt Regency Baltimore on the Inner Harbor, Baltimore, MD, USA

This will take place at the 26th HL7 Annual Plenary & Working Group Meeting, September 9-14, 2012

Inquiries about this tutorial can be made to

More information on the event and registration:

The European Patients’ Forum (EPF) is implementing, together with other six partners, an EU project co-financed by the EU Public Health Programme called “Chain of Trust“. Started in January 2011, this project aims to assess the perspectives of the main end users of telehealth services, i.e. patientsdoctorsnurses and pharmacists across the EU to see whether and how views have evolved since the initial deployment of telehealth and what barriers there still are to building confidence in and acceptance of this innovative type of services.

For more information on Chain of Trust, please visit the project website at

One of the tools that the Chain of Trust consortium is using in order to assess the views of patients and health professionals on telehealth is an online survey. This survey, which is available in 11 languages, is aimed at both users and non-users of telehealth services and consists of two questionnaires, one for patients and one for health professionals.

The online questionnaires can be accessed directly via

EPF will particularly value your support in disseminating this online survey across patient and health professional groups to help us reach out to as many respondents as possible. We would be very grateful, therefore, if you could disseminate this survey across your members and contacts.

On behalf of the project consortium, we would like to thank you very much for your valuable input and for contributing towards a successful completion of the project!

The deadline for submitting the survey is Wednesday 20 July.

Kind Regards,

Özgün Ünver

Programme Assistant

European Patients’ Forum

Rue Belliard 65

B-1040 Brussels

Tel: +32 (0)2 280 23 34

Fax:+32 (0)2 231 14 47

E mail:


Karen Munnelly

PA to Chief Executive

Irish Platform for Patients’ Organisations, Science and Industry

3rd Floor, La Touche House, 1 Grove Road, Rathmines, Dublin 6

Tel: 00353 (1) 407 1629

Research Possibilities & Partnerships

Members of ACENDIO who would like to notify others of their ongoing research or who would like to invite others to become partners in their research are invited to include abstracts/synopses on the new Research Possibilities & Partnerships page. There is already one call on this site.

Note, you must log in to the site if you wish to access this page.

Welcome to the Redesigned ACENDIO Site

Our site has been undergoing a revamp over the last week or so. Page layouts have changed quite a bit and the site is now built on WordPress, the most popular blogging platform in the world.

On the navigation bar (at top), you’ll find all the public access pages for the site, including our sign-up page.

On the right-side navigation bar, you’ll find other site navigation options. New posts will be listed in the Recent Posts box as they’re added to the site. These will typically be bits of news and events related to ACENDIO and its members.

A new feature of the site is the ability to leave comments on posts, so now you can make yourself heard! Comments are manually reviewed before being published just in case something needs to be filtered. We also have filters in place to automatically block spam. Recent comments are automatically listed in the Recent Comments box as they’re published, and include a link back to the post where the comment was left.

The ACENDIO Resources box contains links to a couple of specific ACENDIO documents.

The site is also being broken down into categories so that sections of it are easier to maintain. You’ll see more categories appear over time in the Categories section of the navigation bar. Currently, the ACENDIO News and Members Only categories are the only ones listed. Access to what’s in this category is restricted to registered, paid-up members. If you are a member, you can use the Login link at the top of the navigation bar to sign in and get access to the Members area.

The Archives section simply groups any posts made by date. If you’re looking for some historical information, that’s one way of finding it. Another way is to use the Search box at the top of each page.

Finally, the Tags are common keywords that appear on pages on this site. Clicking one of them will show a list of posts that contain that keyword. The size of a tag is related to how common that keyword is on the site (the larger the font, the more times the keyword appears in posts). As new posts are added to the site, the Tags list will change. It’s not an important part of the site but gives some indication of what popular topics are.