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ACENDIO Member’s Research Work in Malawi


I will again be travelling to Malawi in June/July to engage in participatory action research building activities with people in a region called Chilanga. I am leading discussions on health initiatives and it is our hope that this will lead to evidence-based outputs. Two students from the TCD School of Nursing and Midwifery will accompany me (one children/general nursing and one intellectual disability nursing) and we will be joined by Canadian students from primary education and international development. My colleague, Prof. Christopher Stonebanks (, is co-director of this project with me and leads the education component. Last year, two intellectual disability nursing students also travelled from TCD and set the seed for family support for people with disabilities. Their published record of this was recently in Learning Disability Practice.

This year has seen significant building and provision of locations for health and education initiatives to take place. These developments have emerged from a long process of dialogue and collaborative engagement. This is a long term project which traverses all areas of health and education. I am eager that, as community wellbeing issues become clarified and prioritised by the people themselves, others from our colleges and beyond will join in this work. This will see the need for responses around maternal, infant, child, adolescent, adult, older person wellbeing as well as areas such as disability and chronic illness. This is the beginning of a PAR community health/wellness assessment which will draw on nursing data once community have named their priorities.

The overall project has three components:

1. Research. This has an overarching PAR structure but individual components may explore and gather evidence using other methodologies. The research cluster, of which I am co-director, is located in Bishops University in Quebec, but it is my hope that a research network will develop between Canadian, European and Malawian collaborators.
2. Knowledge Transfer. As it stands, there are a number of domains of knowledge transfer. Students travel to Malawi, not as volunteer tourists, but as individuals who seek to engage with other people, acknowledging and attempting to park issues of power. Collaborative learning takes place between students and Malawian collaborators. We are investigating possibilities of innovative approaches to developing educational possibilities too for Malawians which will lead to accredited outcomes.
3. Resource and Agency. This is the philantrophic aspect of the work. We bring resource to the work but our Malawian collaborators identify what resource they can bring and together we work to develop the outputs that they have stated are required, grounded in research, evidence-based knowledge and produced from knowledge transfer activities. This aspect of the work is being registered as a charitable agency in Canada.

Students and academics all fund themselves and anything that is raised elsewhere goes directly into the project work. Evidence of work underway and nearing completion can be seen at

If you wish to assist with this work in any way please do not hesitate to contact me or visit the following link:

Kind regards and thanks for reading this post.

Fintan Sheerin ( Read the rest of this entry

Marjory Gordon

Marjory Gordon, who died on 29th April, will live on in the practice of the millions of nurses all around the world who use the Functional Health Patterns as the framework for nursing assessment and the concept of nursing diagnosis to understand the phenomena that are the basis of nursing knowledge. She was a member of the small group of nurses who met way back in 1973 to discuss how to express these phenomena in a standardised  terminology, from which grew NANDA, of which she became the first President and an active member right up to her death. In addition to her work on diagnosis terminology, her work on clinical reasoning is fundamental to the way we practice nursing. Listening to her at my first NANDA conference in Pittsburgh changed for ever the way I think about nursing – everything I had puzzled about suddenly fell into place. Over the years that followed she became a much loved mentor and friend.

Every member of ACENDIO will be familiar with her work and will have their own personal memories; mine is of the 2001 ACENDIO conference held in Berlin when on a freezing Sunday morning after the conference was over a small group of us found our way to the local flea market and Marjory, who said she loved flea markets, bought a dreadful woolly hat to keep out the cold!

We  will all miss her.


Marjory Gordon RIP


It is with great sadness that I read this evening of the death of Marjory Gordon.

Marjory was first and foremost a visionary nursing leader who inspired many of us to explore the essence of what nursing actually is. I had the pleasure of spending time with her during ACENDIO and NANDA conferences many years ago and was struck by her accessibility as a person.

Whilst I know that the recent years were challenging for her, I understand that she showed great resolve. Her death is a loss, not just to nursing in the USA or in the NANDA-I community; it is also a loss to her colleagues in Europe.

I wish to convey to you all the deep sympathies of ACENDIO.

Dr. Fintan Sheerin

President ACENDIO

Praxis Malawi – Appeal



Dear Colleague,

You know me from my work in ACENDIO, where I have served on the board for many years, as board member, Secretary and Vice-President. I have also run the Secretariat for some years. I am writing to you in a personal capacity now, with the permission of the ACENDIO President

In June of this year, I will be travelling to Malawi for 4 weeks as part of a Canadian-led participatory action project entitled Praxis Malawi ( The work is underpinned by the critical pedagogical approach described in Paolo Freire’s work. I am project coordinator for developing a ‘community health clinic’ action from concept to reality and will be working closely with locals in the Kasungu area of Malawi and international colleagues. Two intellectual disability nursing students are travelling with me in a volunteer capacity and we will be joined by a Canadian wound care nurse specialist and a biochemistry and international relations student from Mount Allison University in Canada.

Our first piece of work with the communities will focus on family health and child-health education and promotion as well as starting some initial work around disability. We aim to supply each family with a basic family health kit which will be easy and cheap to replenish from locally available resources. We are currently identifying these sources with local health personnel and we plan to purchase these requisites when we arrive in early June. Whilst my costs are being met in their entirety from a number of sources, I am currently trying to raise funds to bring over to meet the health requisite costs. We estimate that we currently have about €1000 between what has been raised in Canada and here but this and any extra money will be used to sustain our health actions and to expand the focus from family to village health. It will go directly to the people themselves and none will be used for administrative costs.

If you are in a position to help in any way, please consider donating something to my gofundme account: (

Many thanks for reading this email. I hope you do not mind me sending it to you on this one occasion.

Dr. Fintan Sheerin


ENS4Care Survey Is Live

Dear EFN members,

We are very pleased to announce that the ENS4Care questionnaire to collect the practices has been launched today!

Please find below the link to Survey Monkey, here below, for you to complete and/or disseminate it to your network. Please, bear in mind that the link will be also published at the ENS4Care website, Twitter and LinkedIn.

The deadline to submit the practices has been extended until 14 March 2014.

If you have any questions, please do not hesitate to contact the EFN office (0032 2 512 74 19).

Best regards,

ACENDIO Publications

All Newsletters are now available on open access along with the proceedings of the most recent ACENDIO conferences. The latest Newsletter can be accessed now.

ACENDIO 2013 Registration Open

Registration for the 9th Biennial Conference of ACENDIO is now open.

The Conference of will take place in the Radisson Blu Hotel, Golden Lane, Dublin, Ireland, on 22nd and 23rd March 2013. This is the first time that the conference will have been held in Ireland and we are looking forward to welcoming many ACENDIO members and other colleagues from across Europe and beyond. This conference has all the signs of being a very exciting one and will continue the eHealth focus of the previous conference. This time, though, we are examining the implications for nursing as we innovate for a rapidly changing health care environment.

We are most fortunate to be welcoming four distinguished guests who will provide exciting keynotes (please see next page). These will be complemented by a series of invited workshops on topics of particular interest to ACENDIO’s work.

There has been great interest in the conference with abstracts having been submitted from 20 countries spanning five continents! Indeed, the interest was such that we extended the abstract submission date twice to accommodate those who wanted to send an abstract. The ACENDIO Scientific Committee is currently reviewing all abstracts and notification will be emailed in due course.

Conference registration opened on 19th October 2012 and Early-Bird Fees will apply until 15th January 2013. These fees, which are the same as for the last conference, are as follows:

ACENDIO Members: €275.00

Non-Members: €325.00

Students: €275.00

Remember, payment of the conference fee includes free membership of ACENDIO for the biennium 2013-2015. Registration is via the ACENDIO website (ACENDIO REGISTRATION). Follow the link to the registration page where varying options on accommodation are also available. The low conference fee and the availability of low-fare air travel options from many locations across Europe make this an ideally accessible conference for all.

Finally, if you want to enjoy the Dublin atmosphere, what better time to come than in mid March, when the St. Patrick’s Day Festival will be in full swing ( and what a better year than 2013 as Ireland prepares to welcome back its global family and friends in the wonderful Gathering (

Join our ACENDIO Gathering in 2013!


Professor Anne-Marie Rafferty DPhil CBE FRCN

Dean and Chair of Nursing Policy

School of Nursing and Midwifery

King’s College London


Prof. Rafferty’s interests include workforce research and policy; quality of work environment; nurse and patient outcomes; nursing history, international and colonial nursing; research and health policy.

Professor Jane Grimson PhD FRAC FIAE FICS FRAMI

Director of Health Information

Health Information and Quality Authority


Prof. Grimson’s research interests include knowledge and data engineering, information systems, health informatics, system integration, EHR.

Professor Bonnie Westra PhD, RN, FAAN, FACMI

Associate Professor

School of Nursing

University of Minnesota


Prof. Westra’s research focuses on developing and using knowledge to improve the exchange and use of electronic health data to support older adults to remain safely with optimal health in the community. This focus includes efficient capturing, storing, and secondary analysis of electronic health data; development, standardization, and harmonization of nursing and health data; informatics competencies for effective use of health information technology; and secondary analysis of EHR data, including data mining techniques.

Dr. Cornelia Ruland RN PhD FACMI


Center for Shared Decision Making and Nursing Research
Rikshospitalet National Hospital Oslo,


Dr. Ruland’s interests include: patient preferences and shared decision making; decision support systems (DSS) to support preference-and evidence-based patient care; consumer Health Informatics; evidence-based practice; quality Improvement; DSS for nursing resource management; Web-based education; Issues in knowledge representation.


1. Competent information management - a call for value added to nursing documentation in the HER.

Prof. Anne Moen PhD, Department of Nursing Science, University of Oslo, Norway.

2. Standardised nursing documentation and its effect on patient outcomes

Prof. Anna Ehrenberg PhD, Head of Research, School of Health and Social Studies Dalarna University, Sweden.

Ulla-Mari Kinnunen, Project Researcher (Patient Health Research), University of Eastern Finland, Finland

3. European Observatory on Nursing Standards


4. eHealth workshop (focusing on hardware and applicability for nursing)

Martin Lysser, Nursing and Medical Informatician, INSELSPITAL, Universitätsspital Bern, Switzerland.

5. To be or not to be represented? The use of nursing standardized language in a multi-professional health record.

Dr. Jan Florin, Head of Department, School of Health and Social Studies Dalarna University, Sweden.

The European Patients' Forum (EPF) is implementing, together with other six partners, an EU project co-financed by the EU Public Health Programme called "Chain of Trust". Started in January 2011, this project aims to assess the perspectives of the main end users of telehealth services, i.e. patientsdoctorsnurses and pharmacists across the EU to see whether and how views have evolved since the initial deployment of telehealth and what barriers there still are to building confidence in and acceptance of this innovative type of services.

For more information on Chain of Trust, please visit the project website at

One of the tools that the Chain of Trust consortium is using in order to assess the views of patients and health professionals on telehealth is an online survey. This survey, which is available in 11 languages, is aimed at both users and non-users of telehealth services and consists of two questionnaires, one for patients and one for health professionals.

The online questionnaires can be accessed directly via

EPF will particularly value your support in disseminating this online survey across patient and health professional groups to help us reach out to as many respondents as possible. We would be very grateful, therefore, if you could disseminate this survey across your members and contacts.

On behalf of the project consortium, we would like to thank you very much for your valuable input and for contributing towards a successful completion of the project!

The deadline for submitting the survey is Wednesday 20 July.

Kind Regards,

Özgün Ünver

Programme Assistant

European Patients' Forum

Rue Belliard 65

B-1040 Brussels

Tel: +32 (0)2 280 23 34

Fax:+32 (0)2 231 14 47

E mail:


Karen Munnelly

PA to Chief Executive

Irish Platform for Patients' Organisations, Science and Industry

3rd Floor, La Touche House, 1 Grove Road, Rathmines, Dublin 6

Tel: 00353 (1) 407 1629

Research Possibilities & Partnerships

Members of ACENDIO who would like to notify others of their ongoing research or who would like to invite others to become partners in their research are invited to include abstracts/synopses on the new Research Possibilities & Partnerships page. There is already one call on this site.

Note, you must log in to the site if you wish to access this page.