ACENDIO is planning to hold a half day meeting of the ACENDIO working group on eHealth in Dublin, Ireland, on 10th February 2012. If you are interested in attending please email the Secretariat (secretariat@acendio.net). There is no registration charge for ACENDIO members. Further information.
The European Patients’ Forum (EPF) is implementing, together with other six partners, an EU project co-financed by the EU Public Health Programme called “Chain of Trust“. Started in January 2011, this project aims to assess the perspectives of the main end users of telehealth services, i.e. patients, doctors, nurses and pharmacists across the EU to see whether and how views have evolved since the initial deployment of telehealth and what barriers there still are to building confidence in and acceptance of this innovative type of services.
For more information on Chain of Trust, please visit the project website at www.chainoftrust.eu.
One of the tools that the Chain of Trust consortium is using in order to assess the views of patients and health professionals on telehealth is an online survey. This survey, which is available in 11 languages, is aimed at both users and non-users of telehealth services and consists of two questionnaires, one for patients and one for health professionals.
The online questionnaires can be accessed directly via http://www.chainoftrust.eu/
EPF will particularly value your support in disseminating this online survey across patient and health professional groups to help us reach out to as many respondents as possible. We would be very grateful, therefore, if you could disseminate this survey across your members and contacts.
On behalf of the project consortium, we would like to thank you very much for your valuable input and for contributing towards a successful completion of the project!
The deadline for submitting the survey is Wednesday 20 July.
Kind Regards,
Özgün Ünver
Programme Assistant
European Patients’ Forum
Rue Belliard 65
B-1040 Brussels
Tel: +32 (0)2 280 23 34
Fax:+32 (0)2 231 14 47
E mail: ozgun.unver@eu-patient.eu
Web: www.eu-patient.eu
Karen Munnelly
PA to Chief Executive
Irish Platform for Patients’ Organisations, Science and Industry
3rd Floor, La Touche House, 1 Grove Road, Rathmines, Dublin 6
Tel: 00353 (1) 407 1629
Members of ACENDIO who would like to notify others of their ongoing research or who would like to invite others to become partners in their research are invited to include abstracts/synopses on the new Research Possibilities & Partnerships page. There is already one call on this site.
Note, you must log in to the site if you wish to access this page.
The ACENDIO website is up and running again. All members should have received an email informing them of how to access member areas. If you did not receive this, please contact the secretariat email.
Our site has been undergoing a revamp over the last week or so. Page layouts have changed quite a bit and the site is now built on WordPress, the most popular blogging platform in the world.
On the navigation bar (at top), you’ll find all the public access pages for the site, including our sign-up page.
On the right-side navigation bar, you’ll find other site navigation options. New posts will be listed in the Recent Posts box as they’re added to the site. These will typically be bits of news and events related to ACENDIO and its members.
A new feature of the site is the ability to leave comments on posts, so now you can make yourself heard! Comments are manually reviewed before being published just in case something needs to be filtered. We also have filters in place to automatically block spam. Recent comments are automatically listed in the Recent Comments box as they’re published, and include a link back to the post where the comment was left.
The ACENDIO Resources box contains links to a couple of specific ACENDIO documents.
The site is also being broken down into categories so that sections of it are easier to maintain. You’ll see more categories appear over time in the Categories section of the navigation bar. Currently, the ACENDIO News and Members Only categories are the only ones listed. Access to what’s in this category is restricted to registered, paid-up members. If you are a member, you can use the Login link at the top of the navigation bar to sign in and get access to the Members area.
The Archives section simply groups any posts made by date. If you’re looking for some historical information, that’s one way of finding it. Another way is to use the Search box at the top of each page.
Finally, the Tags are common keywords that appear on pages on this site. Clicking one of them will show a list of posts that contain that keyword. The size of a tag is related to how common that keyword is on the site (the larger the font, the more times the keyword appears in posts). As new posts are added to the site, the Tags list will change. It’s not an important part of the site but gives some indication of what popular topics are.